Design through stories: Experience-based design in pediatric healthcare
February 23, 2022
February 23, 2022
How interviewing patients and families helped shape the redesign plans for patient rooms at a blood and marrow transplant/cellular therapy unit
A story can mean so much. Hearing about the experiences of patients and family members can affect us deeply, injecting us with focus and propelling us forward as we design with a particular end user in mind.
Experience-based design is more than just understanding the clinical flow or asking patients for input on design decisions. It’s looking at the experience of an event. It’s hearing the stories that patients carry with them and the impact of their experience on all five senses. While it’s important to design a functional healthcare space, it’s also vital to maintain a human touch.
How can you combine function and experience? Patient experiences are sensitive and personal, so how do you gather and apply these experiences of patients and their families to design spaces that improve experiences?
We’ll share some lessons learned from a rewarding project in our hometown of Toronto, Ontario. Adopting an experience-based design approach to healthcare design—especially on pediatric projects—can have a big impact on the healthcare experience.
We incorporated experience-based design while working on the redesign of the blood and marrow transplant/cellular therapy (BMT/CT) unit at The Hospital for Sick Children (SickKids), which provides care for patients from across Ontario and Canada’s Atlantic provinces.
This unit is home to some of SickKids’ most vulnerable patients, who stay in isolation rooms for weeks to months at a time. They require stringent infection control measures because of their compromised immune systems. In the unit, children can receive treatment for leukemia, lymphoma, aplastic anemia, sickle cell disease, and other conditions.
Staff on the BMT/CT unit have delivered care in the current space for 25 years. Patient rooms are small and require upgrades to support new technology, individual washrooms, physical therapy, and comfort for patients and their families.
During the beginning stages of our redesign of the unit, which took place prior to the COVID-19 pandemic, we had the opportunity to use one larger patient room as a prototype. We used the room to sample different technologies and materials. It enabled care teams to think about how they might work in the new space.
This project gave us the opportunity to engage with end users—children, youth, and their families—which provided a key element of the design process. The experience of patients or caregivers in this type of environment is critical because the extended hospitalization allows people to think about how they might change the space. We knew we needed to hear their perspectives.
Patient experiences are sensitive and personal, so how do you gather and apply these experiences of patients and their families?
When it comes to experience-based design in pediatric healthcare environments, you need to approach the engagement process carefully. Aside from being empathetic—especially when working with current patients and their families—here are some ideas to consider, taken from our work on the BMT/CT unit:
After conducting your engagement, you can look at ways to enhance your design with the feedback you have received. Dive deep and immerse yourself in that experience. Imagine every possible way you can make the experience better for patients and the family members (whose well-being is so important, given the important role they play in the care of their child).
For example, rather than just painting a wall, could you add a marker board for children and youth to doodle on during their stay? Your design decisions can help create something more than a space of healing.
In pediatric healthcare, an experience-based approach to your design can lead to a well-rounded process that reflects the unique needs of young patients and their families. We’re driven by the balance between leaning on our technical knowledge and incorporating stories we hear from families. While working on the BMT/CT unit, we always put ourselves in the position of the people we were designing for—such as the child and caregiver staying in the hospital for weeks.
When projects like these, it’s all about listening. And the more you listen, the better you design.